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Advancing Trust in Medical Research: A Community Dialogue with the Family Members of Henrietta Lacks

Friday, July 7, 2017 - 11:00am to 1:30pm

Family members of Henrietta Lacks, an African American woman whose cancer cells became the most important cell lines in medical history, will be at the University of Illinois at Chicago to discuss the impact of her legacy on medical research.   Experts from UI Health Cancer Center and the National Institutes of Health will talk about efforts to safeguard public trust in research and UI Health Cancer Center’s participation  the National Institutes of Health All of Us research program, a historic effort to gather data from more than one million people living in the United States to develop population-specific treatments for disease and to improve health.  

The HBO film “The Immortal Life of Henrietta Lacks,” starring Oprah Winfrey, will be screened and copies of the book will be available for purchase and signature by Lacks family members.

The program is free and open to the public. Registration requested.

WHEN: Friday, July 7, 2017

11:00 a.m. – 12:00 p.m.: Lunch

12 – 1:30 p.m.: Speaker program/ panel discussion with:

  • Lacks family members (Henrietta Lacks’ daughter-in-law, Shirley Lacks; Lacks’ granddaughter, Jeri Lacks Whye and Lacks’ great granddaughter, Veronica Robinson
  • Dara P. Richardson-Heron, chief engagement officer, National Institutes of Health All of Us Research Program
  • Karriem S. Watson, DHSc, MS, MPH, Director of Community Engaged Research and Implementation Science, UI Health Cancer Center
  • Robert A. Winn, MD, Associate Vice Chancellor for Community Based Practice; Director, University of Illinois Cancer Center; Professor of Medicine, University of Illinois at Chicago

1:30 p.m. – 2 p.m.: “The Immortal Life of Henrietta Lacks” by Rebecca Skloot book signing

2:00 p.m. – 3:30 p.m.: Screening of the HBO film “The Immortal Life of Henrietta Lacks” starring Oprah Winfrey

WHERE:

UIC Student Center West
828 S. Wolcott Ave., 2nd floor

DETAILS:

Henrietta Lacks (1920 – 1951) was an African American woman whose cancer cells were the source of the HeLa cell line, the first immortalized cell line to be used medical research. Lacks was not asked if her cells could be used, nor did she receive any financial compensation for her cells or the discoveries they enabled, including chemotherapy, the polio vaccine and genetic mapping. In fact, Lacks was unaware her cells were being used in countless medical experiments. Her family only became aware of HeLa cells in 1975.

In the last few decades, and even more so after the publication of the biography, “The Immortal Life of Henrietta Lacks” by Rebecca Skloot (2010) on which the HBO film is based, Lacks’ story has become more well-known.

The Lacks family, community and special guests will discuss the importance of diverse populations participating in clinical research and what academic partners can do to increase trust and engagement, in advance of the start of enrollment for All of Us, which will begin this fall. 

REGISTER

https://cancer.uillinois.edu/family-henrietta-lacks-speak-uic